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mjdiver91 (November 30, 1999 at 12:00 am)
i have nystagmus. eyes shake and i compensate with a 15 degree turn of the head to the right. doesn't bother my day to day life though and I dont think I would like to go through that kind of surgery for something that doesnt affect me very much.
mrmonter (November 30, 1999 at 12:00 am)
does anybody know if that procedure really works
Jpurser1 (November 30, 1999 at 12:00 am)
I have Nystagmus! :D
mariomonterroso (November 30, 1999 at 12:00 am)
did you get it? did it work?..
danieyellen (November 30, 1999 at 12:00 am)
my son had this done at six months of age. the problem is that he will have to have it done again at some point in his life as he grows.
bobunf (November 30, 1999 at 12:00 am)
I had this operation (at the age of 67) in Pittsburgh in April of 2008; tenotomy I think it's called. It worked. I can read things that I couldn't before; my night vision is a lot better; and I improved two lines on the damned eye chart. And there were no adverse effects.This after I'd been told by 15 opthamalogists over a lifetime that there was no treatment.I'd had the condition my whole life; the operation was a mini-miracle.Bob
mariomonterroso (November 30, 1999 at 12:00 am)
did you get the surgery man? did it work for you... i have periodic alternating nystagmus... i have mor than one null zone.. very annoying situation
swfrank (November 30, 1999 at 12:00 am)
It has been a year since this video broadcast,; I am first viewing it. I am 54 with CN, and my oldest sister also has CN. I would like to know if this surgery is an option at this stage of life, as most CN patients are always "looking" for improvement.
superdupper999 (November 30, 1999 at 12:00 am)
I have this. I can barely drive with the correction of my glasses even. I had some kind of muscle surgery before...but I was ten then so I don't know if this is the same thing. Any I don't think I can get surgery agian.
bonger15 (November 30, 1999 at 12:00 am)
I have nystagmus. I had this surgery done about 2 years ago. It made my vision improve from 20/60 to 20/40. It was amzaing who much this surgery improved my life. To anyone with nystagmus I would like to say have this operation done. Dr. Bernstien was a great doctor to preform this operation. |
